Hey readers! 🌟 Exciting developments in the celiac world this week as researchers unveil a groundbreaking tool for assessing gluten exposure risk in children. With food labeling challenges still persisting, it's refreshing to see progress in clinical assessment tools. Let's dive into this week's highlights!
🔍 Research & Clinical Advances
New Validated Tool Helps Clinicians Identify Gluten Exposure Risk in Children with Celiac Disease — The Gluten Exposure Risk Assessment (GERA) provides a standardized, behavior-based screening method to identify risk factors related to gluten exposure in pediatric patients. — Celiac Disease Foundation
"This is a major advancement in pediatric celiac care”
President John F. Kennedy's Medical Records Suggest He Had Undiagnosed Celiac Disease — Historians and medical experts suggest JFK's extensive health issues, including gastrointestinal problems that Jackie Kennedy called the "Kennedy Stomach," align with symptoms of celiac disease. — Jon Bari
Researchers discover a new metabolic compound that regulates body weight — Scientists have identified BHB-Phe, a compound that activates neurons in the hypothalamus and brainstem to suppress feeding behavior, potentially offering new therapeutic approaches for obesity. — Taylor Barnes
📊 Advocacy & Awareness
American Celiacs are Forced to Rely on Ultra-Processed Foods in the Absence of Mandatory Labeling — The lack of mandatory labeling for all gluten-containing grains has led many celiac patients to depend on ultra-processed gluten-free foods, which often lack essential nutrients. — Celiac Journey
By The Numbers: Food Allergies & Celiac Disease — Over 33 million Americans suffer from food allergies, with celiac disease rates increasing five-fold in American children since the 1980s, highlighting the urgent need for better labeling practices. — Jon Bari
Facts to keep in mind about FDA labeling — The article emphasizes the importance of transparent food labeling practices, particularly for those with gluten sensitivities, advocating for comprehensive disclosure of all gluten sources on packaging. — Tricia Thompson
🍽️ Lifestyle & Resources
Cheerios testing protocol for gluten — The article discusses General Mills' gluten testing protocol for Cheerios, noting the lack of recent communication about updates since the last confirmed details in 2021. — Tricia Thompson
Gluten-free Vacations — Ellen, a travel advisor specializing in gluten-free vacation planning, helps travelers with celiac disease enjoy stress-free trips with suitable dining options at popular destinations. — 6 Reasons Why We Love AmaWaterways
White Chocolate Brownies — This recipe for gluten-free white chocolate brownies features a fudgy texture with chunks of white chocolate and a classic crackled top, perfect for coeliacs with a sweet tooth. — Sarah Howells
Ep 338 August 2025 Roundup — Host Cinde Little and guest Ellen Bayens discuss valuable resources including a new dietary supplementation program by Selena DeVries RD aimed at alleviating celiac symptoms. — Cinde Little
📅 Upcoming Events
Events Around the Nation July/Aug 2025 — The National Celiac Association announces several upcoming events including a webinar on school accommodations, a gluten-free cooking session, and a Celiac Birthday Bash for families. — NCA
💭 Perspective
A writer learns to embrace her imperfect recovery from an eating disorder — Mallary Tenore Tarpley shares her journey of navigating recovery from anorexia, emphasizing the importance of accepting imperfections in recovery rather than pursuing an unrealistic notion of 'full recovery'. — Alicia Garceau
This perspective on embracing imperfection in recovery resonates with many in the celiac community who navigate the challenges of maintaining a strict gluten-free diet in an imperfect world. Sometimes acknowledging the middle ground—doing our best while accepting occasional setbacks—can lead to a healthier relationship with both food and our bodies.
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